About Us

The Child Growth Foundation

The Child Growth Foundation (CGF) is a leading UK charity focusing on the support and management of rare growth conditions affecting children and adults. We have many parents and children who are members, as well as a large and active adult membership.

Our Mission:

“Our mission is that the UK has a system where all families affected by growth conditions can receive a clinical diagnosis and corresponding care plan, and no-one feels alone or isolated”.

Our Purpose:

The CGF’s role in moving towards that vision, and the reason we exist, is to:

  • Support children and adults with growth related issues, and their families
  • Support research into greater understanding and management of conditions
  • Raise awareness of growth conditions
  • Support health professionals in the optimal diagnosis and management of these conditions

Our values:

In pursuit of our vision we will be:

  • Compassionate – putting people first with humanity, warmth and care
  • Professional – gaining credibility from leading health care professionals and associated organisations
  • Relentless – in our pursuit of a brighter tomorrow for all families impacted by growth conditions

Conditions Supported by the Foundation

The CGF will provide information, advice and support relating to all growth conditions. For some conditions, other specialised support organisations exist. The CGF has good relationships and contacts with these organisations and can advise on other sources of support and information.

The Foundation excels in providing support to the rarer growth conditions, these include:

  • Growth Hormone Deficiency (GHD)/Multiple Pituitary Hormone Deficiency (MPHD)
    IGF-1 Deficiency
  • Premature Sexual Maturation (PSM)
  • Russell Silver Syndrome (RSS)/Intrauterine Restriction (IUGR)/Small for Gestational Age (SGA)
  • SHOX
  • Sotos Syndrome
  • Tatton Brown Rahman Syndrome
  • Weavers Syndrome
  • Patients without a diagnosis

As research into growth continues the Child Growth Foundation evolves to support children, adults and their families with both newly diagnosed conditions and those seeking diagnosis.

For more information, or support with any of these conditions, visit our main site

Contact Us

Our helpline is available to everyone from 9.30am until 4pm, Monday to Friday (please leave a message if we are not available and we will get back to you as soon as possible)

If you are not a member and find the service helpful please consider becoming a member, because without the income from our members the service would not be available to help our families. 

Child Growth Foundation.
Registered Charity Number: 1172807
Copyright 2018